fbpx Polka: Brochure | Ecsite

Polka: Brochure

Polka brochure cover

Summary description of the Polka project, aimed at fostering the opinion of patient representatives on future European policies for rare diseases, or to collect their views on existing ones.

Contains a description of the Playdecide game.

Public resource


  • patients
  • rare disease
  • medicine
  • healthcare
  • Polka
  • policy



The project facilitated the consultation of the European rare disease community at large, with the aim of building consensus on preferred public health policy scenarios for rare diseases.